Elizabeth Lounsbery

Liz Lounsbery is a mom on a mission. As an active-duty military spouse and mother of three, Liz navigates the unique challenges of military life while fiercely advocating for her daughter Isla, who lives with multiple rare diseases and disabilities. From fighting for accessible healthcare to ensuring Isla’s voice is heard in a world that often overlooks medically complex children, Liz’s advocacy is rooted in love and a deep belief that every child deserves a joyful, dignified life.

Liz is passionate about bringing awareness to the realities families face within the rare disease and disability communities, highlighting the gaps in care while celebrating the everyday victories that matter most. She also understands the quiet strength it takes to hold a family together while facing deployments, moves, and the uncertainties of military life.

When she’s not navigating medical appointments, therapies, or IEP meetings, you can find Liz soaking up the chaos and sweetness of everyday moments with her children, scrolling with a coffee in hand, or finding small pockets of rest through reading. Her story is one of resilience, humor, and the relentless pursuit of a world where every child, regardless of ability or diagnosis, can thrive.